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The New Zealand LAM Charitable Trust


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THE TRUST

The New Zealand LAM Charitable Trust was established in 1999 and is committed to offering support to women with LAM, to educate both the medical and lay communities about the disease, and to raise funds to stimulate scientific research into the causes of the condition and ultimately to find a cure.

Lymphangioleiomyomatosis is pronounced lim-fan je-o-lio mio-ma-to sis. Lymph and angio refer to the lymph and blood vessels. Leiomyomatosis refers to the formation of the bundles of the unusual muscle cells.


OUR BEGINNINGS

The New Zealand LAM Trust was set up in Auckland in 1999. The Trust came out of a personal sense of urgency to help find a cure for this disease.

Bronwyn Gray's daughter Lisa was diagnosed with Lymphangioleiomyomatosis in 1997 and the family was put in touch with the American LAM Foundation which was established in Cincinnati, Ohio in 1995.

With support for New Zealand women suffering from LAM and fundraising for research as the central focus, Bronwyn Gray has established the New Zealand LAM Trust as a non-profit organisation.



OUR CHALLENGE
    - to help to transform the vision of a future without LAM into a reality.
    - to intensify our efforts to raise funds.
    - to educate doctors to recognise early symptoms of LAM.
    - to identify and provide support for every LAM patient in New Zealand.

Our belief is that the cure for LAM will be uncovered by basic scientific investigation. Stimulating research into this rare disease is our major challenge, along with our pledge to fully support the work of the American LAM Foundation, and the work of researchers here and around the world.



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